I only have a sugar free Red Bull keeping my eyes open right now, so this post won’t be the most well-written.
Zizi was put on a 5-day run of antibiotics for what the doc thought was a secondary infection in her sinuses; the second time in the child’s whole life she’s ever been on antibiotics, while back in the olden days, I’d say we popped ‘em down like candy, but I think we actually got candy LESS often, to be honest. For the first 3 days, that damned fever never dropped out of the 99-100 range… just a low burn the whole time. Her cough improved noticably, and immediately, on the meds. Finally on Saturday, her temperature came back to normal, she had more energy, and even her appetite picked back up a little. Yay! We still laid low this weekend to not push things, but saw no reason for her not to go to school on Monday.
I was so stir-crazy with cabin fever that Brent watched her Sunday for 3 hours while I was the one who went out to run a couple errands, just to let me get a break and get out of the house. Sweet man. He also folded a mountain of wash and cleaned the kitchen while I was out at Lowes, getting a new Brita water pitcher (we found out the hard way they are not dishwasher safe – DOH!) and laundry baskets. I’d kinda wanted to indulge in some “me” time, and maybe go to the mall to find an appropriate outfit for our upcoming trip to New York with my parents, but felt guilty when Lowes took too long, and so I just made one more stop to buy a new book by one of my favorite authors, and went back home.
Monday was a complicated morning. Brent needed me to follow him to the repair shop to drop off his car for state inspection, and then take him to work. Zizi had an orthodontist appointment, and needed a letter from her pediatrician clearning her to return to school, and then of course she needed to get back to school for her first day back. it sent our normal routine in the morning into chaos, and we don’t do well with chaos around here.
But wait, there’s more… tell ‘em what I won, Batman….
Zizi was quiet, subdued, and low-energy once again. I thought she was just not thrilled about going back into school after the better part of 2 weeks of Mommy Attention and being at home on beautiful spring days. We picked her up a nice “Back to School” lunch at Wawa (both to try to get her to eat a little more, and because the morning was too crazy to make a proper healthy lunch like I wanted her to have). She seemed fine when I kissed her goodbye after signing her in at the school office,and handing in our Doc’s Note.
I decided it was time for “me time” and went over, finally, to the mall to deal with the wardrobe challenge of the summer: an outfit for me to wear up to New York on the first weekend in May. It could be 90°F up there, it could be raining and in the 50′s. It needs to survive and look New York fabulous after a 2 1/2 hour drive up, so anything involving linen is out. The outfit needs to be equally appropriate for a visit to The American Girl Store, a carriage ride in Central Park and lunch at Park Avenue Spring without looking overdressed, frumpy, or offending my mother’s very exquisite taste and style. It also had to be affordable on my unemployment check, and fit my curvy self in a flattering manner. Oh, and since I am spending what is the whole non-existant budget for my summer clothing on the clothes for one night’s stay in NYC, I need to get a LOT more wearing out of it – it needs to double for job interviews, any graduation parties or family events that come up, and be machine-washable. Not asking much, am I?
It’s a good thing I look good in black, that’s all I’ll say.
It took me two hours, but I managed to find it. And Macy’s is having one of their many sales, that’s a Pre-Sale — I bought the outfit, it’s mine, but now I don’t pick it up until April 25th, and I get 25% off! (And yes, it stays neatly on a hanger the whole time, not balled up in a bag).
I came home and finally, after two weeks, had the house to myself. I got some paperwork done, did wash, and looked for jobs. There’s one I would love, but it would be a huge challenge, and to be honest, I wish I had about 3 years more experience before it popped up as “open” I’m so jazzed about the mission and the work the place does. It’s a soup kitchen/food pantry up in Lansdale, called Manna on Main. I’m sending my resume in, it never hurts to try… but damn, I wish I just had a little more depth in grantsmanship.
So, anyway… the day passed very quickly, and then it was time to go do the morning in reverse: pick up Brent from work, get Zizi from her afterschool program, swing by the car shop, and finally come home and figure out dinner. When Brent went in to sign Zizi out, she came out limping down to the car, and was very whiney and in poor spirits. It ws shocking. Once we got home, she really was upset and I had her cuddle up to me and tell me how her day went – and it hadn’t gone well. She had missed the going away ice cream party for her favorite teacher who was there doing his graduate work in her reading class. Two classmates “bullied her” — which meant they told her to “shush” (this is Quaker school. Real bullying is dealt with severely) She cheered up after we talked a while, but she still seemed.. needy, and tired.
I decided to take her temperature, and my eyes almost popped out of my head – the child’s fever was back, and it was up to 101.8! Higher than it had been the rentire two weeks previously, but a full degree! I dosed her immediately with ibuprophen and called the pediatrician’s night line. Then called her dad to let him know as I waited for the call back.
Got a call back from the nurse practitioner. I mentioned the limping and the general soreness, lack of appetite, fever, and that, given what we’ve been through for 2 weeks, and that we just finished out a round of antibiotics, we need an appointment scheduled… and asked if I should take her to the ER. Don’t want to be a paranoid mom, and an ER trip after 7 pm means we won’t be home until 2 am. If it can wait, it’s better to NOT use our ER, to keep the child comfortable at home. We decided that since the temp wasn’t spiking up very high, we’d wait and see the doc in the office the next day.
But my Spidey-sense ws already on full alert, and I was absolutely twitching. This is like nothing she’s ever had before. I know my kid, this is not normal. I was already thinking that the fever came back after a full course of antibiotics? Infection.
I told Zizi that she was going to sleep in my bed for the night, I wanted to stay close and monitor her temperature. But I was still freaking out, and it was about 8:15…. I finally called Dianne. My go-to Mommy Expert on sick kids. Between the three of them, her kids have had everfuckingthing out there. You know, there’s a point in motherhood, in taking care of sick kids, where you slip into veteran-in-the-trenches mode, and it’s War, and the f-bomb gets issued as a standard prefix before every noun in the sentence. Hence, “Zizi’s fever is back and we’re going back to the doctors’ office obviously the antibiotics didn’t work” becomes “The kid’s fucking fever is fucking back and fuck me with a fucking chainsaw back to the fucking doctor’s fucking office we go. Fucking antibiotics didn’t fucking work. Fuck, fuck, fuck, fuckity fuck-fuck.” at least inside your own head. This is why Di and I are such good friends 3 decades later – we can still talk to each other the same gentle, refined way we did back in all-girls private catholic high school.
I don’t usually call their house at 8:15 at night – that’s past the tire-mommy curfew on phone calls. I hate it when my phone rings after 8. Call me after 10? somebody better already be dead. But I was twitching. I couldn’t NOT call.
Di’s husband Nick answered, and offered to have her call me back, but I guess something in my voice tipped him off and he asked if everything was ok. I spilled it all out – the first fever, the second fever, the antibiotics, the limping, the temperature spike… and he immediately said “Liz, the first thing I can think of is Lyme Disease, with the fever and joint pain – did they test for that? Did you check to see if she has any target-looking red bites on her?”
Oh, Jesus. Because of the hot day, I’d put Zizi in one of her cotton sun dresses, and I never saw her knee. She was wearing a long nightgown for bed, too. I hung up and ran upstairs and the kid was practically already out cold… and I pulled up her nightgown to look, her one knee was the size of a softball – on Zizi, that’s like a snake swallowed a basketball she’s so skinny.
Change of Plans. We all whipped into gear, and Zizi put her dress and sandals back on, we grabbed her Nintendo DS, her blankie and teddy, Brent had to bring me out my book to the car, .. but Zizi and I were at the ER before 9. I called Dave on the way to tell him what was happening, and texted him updates as the night wore on.
WE didn’t get out until 3:15 AM.
And gotta say… never a dull night in the ER. WHOLE Lotta Crazy in the world, just waiting to meet you. Oh, and if the racist douchbag who started yelling at the little black lady just for looking at him reads this – the waiting room was filled with mothers and children. Keep your own F-bombs to yourself in front of our kids. We sure as hell do, and we have a much better reason for using ours. Boo-Hoo, you “were sick and you pay your taxes and you have insurance” (actual quote, from a 260 pound 30-something man who could walk on his own and sit up in a chair) poor widdle you were told to wait, and flipped out after 10 minutes. You scared my kid, who ws sitting there in a wheelchair, and all the other kids and we Moms all moved over across the room, in a big mommy pack and YES, yes we were shooting you evil looks, and yes, every one of us talked to the guards who came to tell you to sit down and STFU that it was all your fault and not the innocent woman whom you were threatening. We’d been there an hour already, you big douchy crybaby. Please know, Jesus may love you, but the rest of us hoped you contracted TB.
But I digress…
The one test we really needed they couldn’t finish in the hours we were there: the Lyme test. The worst part was when the nurse had to draw blood – a lot of blood. And couldn’t find the fucking vein, and my poor baby’s back of her hand was practically stabbed into hamburger. Remember what I said about Ziz undergoing trauma? She can’t break her attention away, and becomes locked into the pain to the point of not being able to realize it is over or it is going to be ok? 20 minutes of her screaming and terrified, at 1:00 in the morning.
And hour later, when the Orthopedic resident offered to take a fluid sample to test to see if the joint was septic (which would have been very, very bad and mandated that we go immediately to Childrens Hospital for surgery) her difficulty with the needles informed our decision. R-I-C-E and mommy watching like a hawk for 24 hours, instead of draining the fluid with an 18 guage needle. Because of everything else, and how detailed I could remember all of her temps and the history of the past 2 weeks, they called it as “Lyme” even without the lab for that test being back yet. The nice nurse even gave me the first dose of the antibiotic to take home with me – the antibiotic is needed every 12 hours exactly, for 21 days, so giving it to her at 3 am would have been a nightmare. 7:30 is much more sane.
Unfortuantely, I wasn’t thinking too clearly when the alarm clock woke me 3 hours after I laid my head on the pillow this morning. I didn’t think to give Zizi a slice of bread and a glass of milk, but only wanted to wake her as little as possible so maybe she’d go back to sleep, and I just gave her the pill with water. ADHD is rough on sleep. If she woke up fully the overtiredness would act to keep her awake. Sigh. The kid’s stomach had only had a small bowl of lightly buttered pasta and about 6 oz. of Gatorade since the night before, so it was good an empty when she swallowed that giant honkin’ capsul of . She tried to go back to sleep and ended up with that strong antibiotic making her throw up, 45 minutes later.
Gotta love yellow stomach bile on a hardwood floor as you run down the hall towards the bathroom. Never even saw the puddle, but landed my bare foot dead smack in the middle of it like a Boss, baby. Yeah. That was fun.
And that was the offical start of the “new” day. Zizi was up. Brent had to work at 10, I begged him to go to the grocery store beforehand, and I was the crazy mother freaking out on the physician’s emergency direct line that my kid threw up her first dose of antibiotic.
And my baby has Lyme Disease. They think we caught it early. They think. I’m still worried sick. This blog post has been my way of procrastinating looking it up online, until I felt calmer. Writing helps me cope. Dianne called this morning when I texted her we were up, what a wonderful best friend. She helped me calm down. I can’t tell anyone else or put anything on Facebook – my mom is supposed to have cataract surgery tomorrow, and there’s no sense in stressing my parents out or telling them anything until we see the doctor, get the drug protocol straightened out, and start moving forward on the solution. I’m getting my therapy by writing about it, not talking about it.
The upside was I managed to get a shower this morning. And man, I needed it. Brent tag teamed me in watching the phone for a call back for an appointment with our pediatrician today, while I enjoyed the decontamination process for a whole self-indulgent 10 minutes. God only knows what was sticking to me from that emergency room. (shudder)
Did you know, if you take a 20 oz bottle of Lemon-Lime gatorade and chug about a third, you can pour in a whole (small) can of Sugar Free Red Bull? And, truly, it’s not that bad a mix, either. I’ll probably glow in the dark after this, but… not half bad.
Our appointment isn’t until 2:30 this afternoon. I really hoped I’d get that call for an earlier squish-us-in time. God, I’m so tired, if I laid down I wouldn’t wake up for 12 hours, and so I can’t even try to catch a nap. Ziz is resting comfortably on the sofa, she has her legs up on a pillow, an ice bag on her knee, and her TV shows on. She even ate a full mug of Chicken & Stars soup, so no complaints.
Sigh. Now I’ve procrastinated enough. Time to go online and do my mommy homework on Lyme Disease.